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Public Health Unit and records

The Public Health Unit carries out evaluation and research work in epidemiology, using population data, particularly from registers.

The Caen University Hospital participates in the health surveillance of the population by creating morbidity registers:

    • The Registry of Malignant Hemopathies of Lower Normandy ( FRANCIM Network ) coordinated by Professor X. TROUSSARD,
    • The Calvados Digestive Tumors Registry ( FRANCIM Network ) coordinated by Professor A ALVES,
    • The Register of Stroke Accidents in the Caen Normandy Métropole region ( Normandystroke ) coordinated by Professor E. TOUZE.

What is a register?

A register is an administrative structure which aims to exhaustively identify all cases of a specific pathology occurring in a well-defined geographical population. Organizations called “registries” have been set up in several French departments in order to better understand the epidemiology of different diseases (evolution of the frequency of the disease, identification of contributing factors, etc.) to better fight against these diseases. Thanks to a permanent and exhaustive census, the registers contribute to better monitoring of these pathologies and to the advancement of research in this area.

The Registers meet the quality requirements set by the Register Evaluation Committee (CER), concerning data collection and validation activities, public health work and research projects.

To ensure their public health and research missions, registers collect information concerning the identity of patients affected by the disease concerned, their place of residence, the detailed description of the pathology, the follow-up and care they receive. .
It is largely the doctors responsible for the diagnosis, care and treatment of patients who provide the registries with this information.
The data collected is covered by medical confidentiality and is strictly confidential. Only authorized register personnel have access to personal data. The only data likely to be transmitted to other public health organizations (Santé Publique France, International Cancer Research Center) is data that does not include a name. This information is necessary to compare the frequency and management of the diseases concerned between various French regions or countries or their evolution over time.

Patient information

According to the recommendations of the CNIL, patients suffering from a disease covered by a register in the territory must be informed that their disease can be recorded in the database of the Registry concerned for research purposes and in the stricter confidentiality. This information can be provided by Registry staff or by doctors involved in patient care.

In accordance with current legislation (GDPR), a person suffering from a pathology concerned by a register can exercise their rights of access, rectification and opposition to the recording and transmission of data about their illness, directly or through the doctor who follows him, by contacting the data protection delegate of the Caen University Hospital at the following email address: dpd@chu-caen.fr.

 

 

 

  • Tasks

    The Public Health, Health Economics, Health Data Unit aims to:

    • to implement the collection of data from the morbidity registers of the CHU Caen Normandie labeled by the CNR :
      • The Hematological Malignancy Registry of the former Basse-Normandie region coordinated by Prof. X. Troussard,
      • The Calvados Specialized Registry of Digestive Tumors created in 1978 and coordinated by Prof. G. Launoy, and integrated into the INSERM U1086 ANTICIPE team.
    • to promote and assist in the creation of population morbidity registers for other pathologies (including non-cancer),
    • to initiate original descriptive epidemiology research using population data from registers, hospital data, data from national Medico-Administrative Databases (SNDS-EGB and PMSI databases),
    • to initiate and conduct interventional studies in the general population.
    Activities

    The establishment of a Health Data Warehouse within the CHU is also planned.

    The main observational studies currently relate to the epidemiology (incidence, mortality, survival) and management of: digestive cancers (register) , hematological malignancies (register) , chronic renal insufficiency (National REIN Register and data from the Biomedicine Agency) , multiple sclerosis (observatory) , bariatric surgery.

    The main specificities of the work carried out in this unit are, on the one hand, the measurement of social and geographical inequalities in incidence, survival and care, in conjunction with the INSERM U1086 ANTICIPE team and the MapInMed platform , and on the other hand the evaluation of actions in the general population, in particular in the field of cancer screening.

    Implications

    The members of the unit are involved in two FHUs : coordinator of the FHU DEPCAN "For useful cancer screening for individuals and society", and coordinator of one of the WPs of the FHU PRECISE "Precision health in inflammatory diseases complex”.

    The CHU Caen Normandie is involved in 3 national registers: digestive cancers, hematology, nephrology and an observatory soon to be a candidate for the stroke .