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Resource and Competence Centers for Cystic Fibrosis

Cystic fibrosis affects the respiratory tract and the digestive system. It is the most common genetic disease. Nearly 200 children with cystic fibrosis are born each year in France (ie one child for 4,500 births) : the number of patients affected by this disease is estimated at more than 7,000 people, > 50% of whom are adults.

To support patients with cystic fibrosis, the Resource and Competence Centers for Cystic Fibrosis were created in April 2002. Made up of a multidisciplinary team of doctors, nurses, dieticians, psychologists, social workers and physiotherapists specializing in cystic fibrosis, the CRCM coordinate the care and follow-up of patients (adults or children) and their families.

There are 49 CRCMs in the territory, 20 mixed (adults and children) , 17 pediatrics and 12 adults. In Caen, the CRCM is mixed. 130 families, 85 children and 45 adults are followed there by health professionals from the CHU.