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Cystic Fibrosis Resource and Competence Centers

Cystic fibrosis affects the respiratory and digestive systems. It is the most common genetic disease. Nearly 200 children with cystic fibrosis are born each year in France (that is, one child for every 4,500 births) : the number of patients affected by this disease is estimated at over 7,000 people, of whom more than 50% are adults.

To support patients with cystic fibrosis, the Cystic Fibrosis Resource and Competence Centres were created in April 2002. Composed of a multidisciplinary team of doctors, nurses, dieticians, psychologists, social workers and physiotherapists specializing in cystic fibrosis, the CRCMs coordinate the care and monitoring of patients (adults or children) and their families.

There are 49 CRCMs ) in the country: 20 mixed (adults and children) , 17 pediatric, and 12 adult. In Caen, the CRCM is mixed. 130 families, 85 children, and 45 adults are followed there by healthcare professionals from the University Hospital.