Cystic Fibrosis Resource and Competence Centers
Cystic fibrosis affects the respiratory and digestive systems. It is the most common genetic disease. Nearly 200 children with cystic fibrosis are born each year in France (that is, one child for every 4,500 births) : the number of patients affected by this disease is estimated at over 7,000 people, of whom more than 50% are adults.
To support patients with cystic fibrosis, the Cystic Fibrosis Resource and Competence Centres were created in April 2002. Composed of a multidisciplinary team of doctors, nurses, dieticians, psychologists, social workers and physiotherapists specializing in cystic fibrosis, the CRCMs coordinate the care and monitoring of patients (adults or children) and their families.
There are 49 CRCMs ) in the country: 20 mixed (adults and children) , 17 pediatric, and 12 adult. In Caen, the CRCM is mixed. 130 families, 85 children, and 45 adults are followed there by healthcare professionals from the University Hospital.
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Team
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Hospital Practitioner
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healthcare manager
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Coordinating Nurse
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Physiotherapist
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Adapted Physical Activity Instructor
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Social Work AssistantPulmonology, CRCM
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Secretary
Team
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Hospital Practitioner
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Hospital PractitionerPediatric Pulmonologist
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healthcare manager
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Coordinating NurseChildcare worker
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Psychologist
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Dietitian
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Secretary
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Physiotherapist
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Adapted Physical Activity Instructor
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Social Work AssistantPediatric Surgery, Pediatric Intensive Care, Pediatric Emergency Department, Gynecology, Postpartum Care, Gynecology and Obstetrics, Family Planning, Child Reproductive Technology Center
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Screenings
Since 2001 , in France, all newborns have been screened for cystic fibrosis at birth through a blood test taken from the heel. This allows for earlier diagnosis, enabling faster and more appropriate care for children with cystic fibrosis.
Consultations & HospitalizationsThe team organizes multidisciplinary consultations and day hospitalizations for patient care.
If necessary, hospitalizations can be carried out in the pediatrics department and if specialist opinions are requested (endocrinology, ENT , Surgery…) , the consultations will be coordinated by the referring physician.