Skip to main content

Public Health Unit and records

The Public Health Unit carries out evaluation and research work in epidemiology, based on population data, particularly from registries.

The Caen University Hospital participates in the health monitoring of the population by establishing morbidity registries:

    • The Calvados Digestive Tumor Registry ( ANTICIPE Research Unit ) coordinated by Professor A. ALVES,
    • The Cerebrovascular Accident Registry of the Caen Normandy Métropole area ( Normandystroke ) coordinated by Professor E. TOUZE.
    • The Registry of Malignant Hematological Diseases of Lower Normandy ( FRANCIM Network ) coordinated by Professor X. TROUSSARD,

What is a register?

A registry is an administrative structure designed to comprehensively record all cases of a specific disease occurring within a well-defined geographic population. Organizations called "registries" have been established in several French departments to better understand the epidemiology of various diseases (evolution of disease frequency, identification of contributing factors, etc.) in order to improve disease control. Through continuous and exhaustive data collection, registries contribute to better surveillance of these diseases and to advance research in this field.

Registries adhere to strict quality standards for collecting and validating data and conducting public health studies. They collect patient information (identity, place of residence, pathology, treatment, and follow-up) primarily provided by physicians.

All data is confidential and protected by medical confidentiality. Only authorized registry staff have access to it, and anonymized data may be used by other public health organizations for regional or international comparisons.

Patient rights

According to the recommendations of the CNIL (French Data Protection Authority), patients with a disease registered in the country must be informed that their disease may be recorded in the database of the relevant registry for research purposes and in strict confidence. This information may be provided by registry staff or by physicians involved in the patients' care.

In accordance with current legislation (GDPR), a person with a condition covered by a register may exercise their rights of access, rectification and objection to the recording and transmission of data relating to their illness, directly or through the doctor who is treating them, by contacting the data protection officer of the Caen University Hospital at the following email address: dpd@chu-caen.fr.

 

  • Crew

    itinerary
    Parking recommended

    car park 2

    • Other car parks nearby
    • car park 2
    • car park 10

    Crew

  • Tasks

    The Public Health, Health Economics, and Health Data Unit has the following objectives:

    • to implement the collection of data from the morbidity registries of the Caen Normandy University Hospital, which are certified by the CNR :
      • The Registry of Malignant Hematological Disorders of the former Lower Normandy region, coordinated by Professor X. Troussard,
      • The Calvados Specialised Register of Digestive Tumors, created in 1978 and coordinated by Professor G. Launoy, and integrated into the INSERM U1086 ANTICIPE team.
    • to promote and assist in the establishment of population-based morbidity registries for other pathologies (including non-cancerous ones),
    • to initiate original research in descriptive epidemiology using population data from registries, hospital data, and data from national Medical-Administrative Databases (SNDS-EGB and PMSI databases),
    • to initiate and conduct interventional studies in the general population.
    Activities

    The establishment of a Health Data Warehouse within the University Hospital is also planned.

    The main observational studies currently focus on the epidemiology (incidence, mortality, survival) and management of: digestive cancers (registry) , hematological malignancies (registry) , chronic renal failure (National REIN Registry and data from the Biomedicine Agency) , multiple sclerosis (observatory) , and bariatric surgery.

    The main specificities of the work carried out in this unit are, on the one hand, the measurement of social and geographical inequalities in incidence, survival and care, in connection with the INSERM U1086 ANTICIPE and the MapInMed platform , and on the other hand, the evaluation of actions in the general population, particularly in the field of cancer screening.

    Implications

    The unit members are involved in two FHUs : coordinator of the FHU DEPCAN "For cancer screening useful for individuals and society", and coordinator of one of the WPs of the FHU PRECISE "Precision health in complex inflammatory diseases".

    The Caen Normandy University Hospital is involved in 3 national registries: digestive cancers, hematology, nephrology and an observatory soon to be a candidate for the registry on strokes .

  • Registers hosted by the Caen Normandy University Hospital

    Calvados Digestive Tumor Registry

    The Calvados Digestive Tumor Registry is coordinated by Professor A. ALVES.

    Established in 1978 at the Caen University Hospital, this specialized registry collects all information relating to digestive cancers diagnosed in residents of the department. It records cases of digestive cancers, as well as clinical, therapeutic, and follow-up data for patients. Each year, nearly 1,000 new cases are identified, and the database contained approximately 26,000 cases in 2018.

    The registry is part of the Federation of Cancer Registries of Lower Normandy, the FRANCIM network and the International Association of Cancer Registries .

    Since 2002, as part of the first cancer plan (2003-2007), the registries have been placed under the joint supervision of the National Cancer Institute ( INCa ) and Public Health France ( InVS ). They contribute to a partnership program aimed at meeting the objectives of the various successive cancer plans.

    They participate in the production of surveillance indicators in France and around the world: national incidence, regional incidence, survival and prevalence.

    In addition, the Calvados Digestive Tumor Registry collaborates on national and international research projects, such as EUROCARE and CONCORD , as well as the work of the FRANCIM network.

    Finally, the data collected is used to conduct research within the ANTICIPE Research Unit , which explores various themes related to cancer.

    Caen Normandy Stroke Registry

    WHO IS CONCERNED BY THIS REGISTER?

    Any person aged over 30 days, who suffered a stroke (ischemic or hemorrhagic) on or after 15/05/2017, and who resided in the territory of Caen Normandie Métropole (407,000 inhabitants) at the time of the stroke.

    WHAT IS THE PURPOSE OF THIS STUDY?

    The main objective of the registry is to determine the frequency and causes of stroke, the nature of risk factors, post- stroke and the frequency of recurrence.

    It will also be necessary to assess the consequences of stroke on: (i) the cognitive functions of patients; (ii) the autonomy of patients (disability, incapacity, etc.); (iii) the quality of life of patients and caregivers.

    The data produced will also help to answer public health questions such as the impact of geographical and socio-economic disparities on: (i) the risk of stroke, the occurrence of recurrences and post- stroke ; (ii) the time and quality of care.

    The medical and economic repercussions of stroke can also be studied: healthcare consumption (hospitalization, rehabilitation, medication consumption…), job loss, benefits (disability pension, personalized autonomy allowance, allowance for disabled adults…).

    WHAT DATA IS COLLECTED?

    The registry is based on the collection of data available in patients' medical and administrative records. The registry collects: socio-demographic data (age, sex), vascular history, risk factors, vital signs (height, weight, blood pressure, etc.), drug treatments received before and after the stroke, laboratory and imaging data, etc. This includes data relating to the initial management of patients at the time of the stroke as well as post- stroke .

    Prior to this step, patients are informed about the collection and use of their data; but also about the possibility of objecting to it.

    HOW ARE THEY COLLECTED?

    To achieve comprehensive data collection, the registry has established partnerships with various organizations: Polyclinique Parc, Fondation Hospitalière de la Miséricorde, Hôpital Privé St Martin, CRLCC François Baclesse, hospitals in Falaise, Argentan, and Flers, SOS Médecins Caen, general practitioners, private neurologists, and medical imaging centers. The next phase of the registry's development will involve working with nursing homes in the region.

    PUBLICATIONS

    Two scientific publications have appeared: “Incidence and outcomes of acute cerebrovascular events: methodology of the population-based NormandyStroke Study” (Neuroepidemiology, Schneckenburger R. et al); “Epidemiology of transient ischemic attack in the Normandy stroke population-based study” (European Stroke Journal, Schneckenburger R. et al).

    PERSPECTIVES

    stroke surveillance system in France through the creation of a network of registries with the university hospitals of Dijon, Brest and Lille.

    Due to the production of data relating to patient care, the registry will also participate in the evaluation and improvement of this care in acute and medium/long term.

    Finally, the registry will also contribute to the evaluation of the effectiveness of preventive strategies implemented at the local and national levels.

    WHO ARE WE ?

    The NormandyStroke registry at the Caen Normandy University Hospital includes a principal investigator (Professor Touzé), five neurologists (Dr. Boulanger, Dr. Schneckenburger, Dr. Bouchart, Dr. Nehme, Dr. Laporte), a coordinating engineer (Mr. Watrin), a clinical research associate (G. Le Du) and a psychologist specializing in neuropsychology (F. Philotée-Jeanne).

    To contact us: normandystroke@chu-caen.fr

    Registry of Malignant Hematological Disorders of Lower Normandy

    The Regional Registry of Malignant Hematological Diseases of the former Lower Normandy (RRHMBN) is a specialized hematology registry that records all incident cases of malignant hematological diseases (MH). It is coordinated by Professor X. TROUSSARD.

    If you are, or have been, affected by a malignant hematological disease and at the time of diagnosis you were domiciled in the department of Calvados, Manche, or Orne, you can access the information note for patients as well as the patient information procedure using the following links: Patient information and information procedure .