Skip to main content

Public Health Unit and records

The Public Health Unit carries out evaluation and research work in epidemiology, using population data, particularly from registers.

The Caen University Hospital participates in the health surveillance of the population by creating morbidity registers:

    • The Calvados Digestive Tumors Registry ( ANTICIPE Research Unit ) coordinated by Professor A ALVES,
    • The Register of Stroke Accidents in the Caen Normandy Métropole region ( Normandystroke ) coordinated by Professor E. TOUZE.
    • The Registry of Malignant Hemopathies of Lower Normandy ( FRANCIM Network ) coordinated by Professor X. TROUSSARD,

What is a register?

A register is an administrative structure which aims to exhaustively identify all cases of a specific pathology occurring in a well-defined geographical population. Organizations called “registries” have been set up in several French departments in order to better understand the epidemiology of different diseases (evolution of the frequency of the disease, identification of contributing factors, etc.) to better fight against these diseases. Thanks to a permanent and exhaustive census, the registers contribute to better monitoring of these pathologies and to the advancement of research in this area.

Registries follow strict quality standards to collect, validate data and conduct public health studies. They collect information on patients (identity, place of residence, pathology, treatment and follow-up) provided mainly by doctors.

All data is confidential and protected by medical confidentiality. Only authorized registry staff have access, and the anonymized data can be used by other public health agencies for regional or international comparisons.

Patient rights

According to the recommendations of the CNIL, patients suffering from a disease covered by a register in the territory must be informed that their disease can be recorded in the database of the Registry concerned for research purposes and in the stricter confidentiality. This information can be provided by Registry staff or by doctors involved in patient care.

In accordance with current legislation (GDPR), a person suffering from a pathology concerned by a register can exercise their rights of access, rectification and opposition to the recording and transmission of data about their illness, directly or through the doctor who follows him, by contacting the data protection delegate of the Caen University Hospital at the following email address: dpd@chu-caen.fr.

 

  • Crew

    itinerary
    Parking recommended

    car park 2

    • Other car parks nearby
    • car park 2
    • car park 10

    Crew

  • Tasks

    The Public Health, Health Economics, Health Data Unit aims to:

    • to implement the collection of data from the morbidity registers of the CHU Caen Normandie labeled by the CNR :
      • The Hematological Malignancy Registry of the former Basse-Normandie region coordinated by Prof. X. Troussard,
      • The Calvados Specialized Registry of Digestive Tumors created in 1978 and coordinated by Prof. G. Launoy, and integrated into the INSERM U1086 ANTICIPE team.
    • to promote and assist in the creation of population morbidity registers for other pathologies (including non-cancer),
    • to initiate original descriptive epidemiology research using population data from registers, hospital data, data from national Medico-Administrative Databases (SNDS-EGB and PMSI databases),
    • to initiate and conduct interventional studies in the general population.
    Activities

    The establishment of a Health Data Warehouse within the CHU is also planned.

    The main observational studies currently relate to the epidemiology (incidence, mortality, survival) and management of: digestive cancers (register) , hematological malignancies (register) , chronic renal insufficiency (National REIN Register and data from the Biomedicine Agency) , multiple sclerosis (observatory) , bariatric surgery.

    The main specificities of the work carried out in this unit are, on the one hand, the measurement of social and geographical inequalities in incidence, survival and care, in conjunction with the INSERM U1086 ANTICIPE team and the MapInMed platform , and on the other hand the evaluation of actions in the general population, in particular in the field of cancer screening.

    Implications

    The members of the unit are involved in two FHUs : coordinator of the FHU DEPCAN "For useful cancer screening for individuals and society", and coordinator of one of the WPs of the FHU PRECISE "Precision health in inflammatory diseases complex”.

    The CHU Caen Normandie is involved in 3 national registers: digestive cancers, hematology, nephrology and an observatory soon to be a candidate for the stroke .

  • Calvados Digestive Tumors Registry

    The Calvados Digestive Tumors Registry is coordinated by Professor A ALVES,

    Created in 1978 at the Caen University Hospital, this specialized register collects all information relating to digestive cancers diagnosed in residents of the department. It thus records cases of digestive cancers, as well as clinical, therapeutic and patient monitoring data. Every year, nearly 1,000 new cases are identified, and the database contained around 26,000 cases in 2018.

    The registry is part of the Federation of Cancer Registries of Lower Normandy, the FRANCIM network and the International Association of Cancer Registry .

    Since 2002, as part of the first cancer plan (2003-2007), the registers have been placed under the joint supervision of the National Cancer Institute ( INCA ) and Santé Publique France ( InVS ). They contribute to a partnership program aimed at meeting the objectives of the various successive cancer plans.

    They participate in the production of surveillance indicators in France and around the world: national incidence, regional incidence, survival and prevalence.

    In addition, the Calvados Digestive Tumor Registry collaborates in national and international research projects, such as EUROCARE and CONCORD , as well as in the work of the FRANCIM network.

    Finally, the data collected is used to conduct research within the ANTICIPE Research Unit , which explores various themes related to cancer.

    Caen Normandy stroke registry

    WHO IS CONCERNED BY THIS REGISTER?

    Any person over 30 days old, victim of a stroke (ischemic or hemorrhagic) occurring on or after 05/15/2017, and residing in the territory of Caen Normandie Métropole (407,000 inhabitants) at the time of the stroke.

    WHAT IS THIS STUDY FOR?

    The main objective of the registry is to determine the frequency and causes of stroke, the nature of risk factors, post- stroke as well as the frequency of occurrence of recurrences.

    This will also involve assessing the consequences of the stroke on: (i) the cognitive functions of patients; (ii) patient autonomy (handicap, invalidity, etc.); (iii) the quality of life of patients and caregivers.

    stroke mortality ; (ii) the time and quality of support.

    The medico-economic repercussions of the stroke could also be studied: healthcare consumption (hospitalization, rehabilitation, medication consumption, etc.), loss of employment, benefits (disability pension, personalized autonomy allowance, allowance for disabled adults, etc.). ).

    WHAT DATA IS COLLECTED?

    The register is based on the collection of data available in patients' medical-administrative files. The registry collects: socio-demographic data (age, sex), vascular history, risk factors, vital signs (height, weight, blood pressure, etc.), drug treatments received before and after the stroke, biological and medical data. imaging… And this, whether data relating to the initial treatment of patients at the time of the stroke or post- stroke .

    Before this stage, patients are informed of the collection and use of their data; but also the possibility of opposing it.

    HOW ARE THEY COLLECTED?

    To achieve exhaustive data collection, the register has set up partnerships with different structures: Polyclinique Parc, Miséricorde Hospital Foundation, St Martin Private Hospital, CRLCC François Baclesse, Falaise Hospital, Argentan Hospital, Flers Hospital , SOS doctor Caen, general practitioners, private neurologists and medical imaging centers. The next axis of deployment of the register will consist of working in conjunction with the EHPADs in the region.

    PUBLICATIONS

    Two scientific publications have been published: “Incidence and outcomes of acute cerebrovascular events: methodology of the population-based NormandyStroke Study” (Neuroepidemiology, Schneckenburger R. et al); “Epidemiology of transient ischemic attack in the Normandy stroke population-based study” (European Stroke Journal, Schneckenburger R. et al).

    OUTLOOK

    stroke surveillance system in France thanks to the creation of a network of registers with the University Hospitals of Dijon, Brest and Lille.

    Due to the production of data relating to patient care, the registry will also participate in the evaluation and improvement of this care in the acute and medium/long term.

    Finally, the register will also participate in evaluating the effectiveness of preventive strategies implemented at local and national level.

    WHO ARE WE ?

    The NormandyStroke registry at Caen Normandy University Hospital has a principal investigator (Pr. Touzé), five neurologists (Dr Boulanger, Dr Schneckenburger, Dr Bouchart, Dr Nehme, Dr Laporte), a coordinating engineer (Mr Watrin), a clinical research associate (G. Le Du) and a psychologist specializing in neuropsychology (F. Philotée-Jeanne).

    To contact us: normandystroke@chu-caen.fr

    Registry of Hematological Malignant Diseases of Lower Normandy

    The Regional Registry of Hematologic Malignancies of the former Lower Normandy (RRHMBN) is a registry specializing in Hematology, which records all incident cases of hematologic malignancies (HM). It is coordinated by Professor X. TROUSSARD.

    If you are, or have been, suffering from a malignant hematological disease and at the time of diagnosis you were domiciled in the department of Calvados, Manche, or Orne, you can access the information note intended for patients as well as the patient information procedure using the following links: Patient information and information procedure .

  • Registers hosted by CHU Caen Normandy

    Calvados Digestive Tumors Registry

    The Calvados Digestive Tumors Registry is coordinated by Professor A ALVES,

    Created in 1978 at the Caen University Hospital, this specialized register collects all information relating to digestive cancers diagnosed in residents of the department. It thus records cases of digestive cancers, as well as clinical, therapeutic and patient monitoring data. Every year, nearly 1,000 new cases are identified, and the database contained around 26,000 cases in 2018.

    The registry is part of the Federation of Cancer Registries of Lower Normandy, the FRANCIM network and the International Association of Cancer Registry .

    Since 2002, as part of the first cancer plan (2003-2007), the registers have been placed under the joint supervision of the National Cancer Institute ( INCA ) and Santé Publique France ( InVS ). They contribute to a partnership program aimed at meeting the objectives of the various successive cancer plans.

    They participate in the production of surveillance indicators in France and around the world: national incidence, regional incidence, survival and prevalence.

    In addition, the Calvados Digestive Tumor Registry collaborates in national and international research projects, such as EUROCARE and CONCORD , as well as in the work of the FRANCIM network.

    Finally, the data collected is used to conduct research within the ANTICIPE Research Unit , which explores various themes related to cancer.

    Caen Normandy stroke registry

    WHO IS CONCERNED BY THIS REGISTER?

    Any person over 30 days old, victim of a stroke (ischemic or hemorrhagic) occurring on or after 05/15/2017, and residing in the territory of Caen Normandie Métropole (407,000 inhabitants) at the time of the stroke.

    WHAT IS THIS STUDY FOR?

    The main objective of the registry is to determine the frequency and causes of stroke, the nature of risk factors, post- stroke as well as the frequency of occurrence of recurrences.

    This will also involve assessing the consequences of the stroke on: (i) the cognitive functions of patients; (ii) patient autonomy (handicap, invalidity, etc.); (iii) the quality of life of patients and caregivers.

    stroke mortality ; (ii) the time and quality of support.

    The medico-economic repercussions of the stroke could also be studied: healthcare consumption (hospitalization, rehabilitation, medication consumption, etc.), loss of employment, benefits (disability pension, personalized autonomy allowance, allowance for disabled adults, etc.). ).

    WHAT DATA IS COLLECTED?

    The register is based on the collection of data available in patients' medical-administrative files. The registry collects: socio-demographic data (age, sex), vascular history, risk factors, vital signs (height, weight, blood pressure, etc.), drug treatments received before and after the stroke, biological and medical data. imaging… And this, whether data relating to the initial treatment of patients at the time of the stroke or post- stroke .

    Before this stage, patients are informed of the collection and use of their data; but also the possibility of opposing it.

    HOW ARE THEY COLLECTED?

    To achieve exhaustive data collection, the register has set up partnerships with different structures: Polyclinique Parc, Miséricorde Hospital Foundation, St Martin Private Hospital, CRLCC François Baclesse, Falaise Hospital, Argentan Hospital, Flers Hospital , SOS doctor Caen, general practitioners, private neurologists and medical imaging centers. The next axis of deployment of the register will consist of working in conjunction with the EHPADs in the region.

    PUBLICATIONS

    Two scientific publications have been published: “Incidence and outcomes of acute cerebrovascular events: methodology of the population-based NormandyStroke Study” (Neuroepidemiology, Schneckenburger R. et al); “Epidemiology of transient ischemic attack in the Normandy stroke population-based study” (European Stroke Journal, Schneckenburger R. et al).

    OUTLOOK

    stroke surveillance system in France thanks to the creation of a network of registers with the University Hospitals of Dijon, Brest and Lille.

    Due to the production of data relating to patient care, the registry will also participate in the evaluation and improvement of this care in the acute and medium/long term.

    Finally, the register will also participate in evaluating the effectiveness of preventive strategies implemented at local and national level.

    WHO ARE WE ?

    The NormandyStroke registry at Caen Normandy University Hospital has a principal investigator (Pr. Touzé), five neurologists (Dr Boulanger, Dr Schneckenburger, Dr Bouchart, Dr Nehme, Dr Laporte), a coordinating engineer (Mr Watrin), a clinical research associate (G. Le Du) and a psychologist specializing in neuropsychology (F. Philotée-Jeanne).

    To contact us: normandystroke@chu-caen.fr

    Registry of Hematological Malignant Diseases of Lower Normandy

    The Regional Registry of Hematologic Malignancies of the former Lower Normandy (RRHMBN) is a registry specializing in Hematology, which records all incident cases of hematologic malignancies (HM). It is coordinated by Professor X. TROUSSARD.

    If you are, or have been, suffering from a malignant hematological disease and at the time of diagnosis you were domiciled in the department of Calvados, Manche, or Orne, you can access the information note intended for patients as well as the patient information procedure using the following links: Patient information and information procedure .