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Amyotrophic Lateral Sclerosis Resource and Competence Center

Amyotrophic Lateral Sclerosis or Charcot 's disease is a neurodegenerative disease that affects motor neurons. It affects adults generally after the age of 50, and causes progressive muscle weakness that can affect limbs, speech, swallowing and breathing.

The ALS Resource and Skills Center of the CHU Caen Normandie is one of 18 specialized centers spread over France in which specific management of the disease is organized in conjunction with the attending physician, caregivers and local caregivers.
Each center is placed under the responsibility of a neurologist and made up of a team of health professionals specially trained in ALS . The centers are coordinated at national level by the branch of the Rare Diseases Health Sector dedicated to ALS ( FILSLAN ).

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    The Competence Center for Amyotrophic Lateral Sclerosis at CHU Caen Normandie is headed by Dr Mathilde Lefilliatre .

    The multidisciplinary team includes neurologists, a nurse coordinator, occupational therapists, physiotherapists, a speech therapist, a psychologist, a dietician and a social worker who work in partnership with pulmonologists, gastroenterologists, ENT, geneticists, the mobile team pain and palliative care and aftercare and rehabilitation services.