, Amyotrophic Lateral Sclerosis or Lou Gehrig's disease , is a neurodegenerative disease that affects motor neurons. It typically affects adults after the age of 50 and causes progressive muscle weakness that can affect the limbs, speech, swallowing, and breathing.
The Resource and Competence Center ALS at Caen Normandy University Hospital is one of 18 specialized centers across France where specific care for the disease is organized in conjunction with the patient's primary care physician, caregivers, and local healthcare providers.
Each center is headed by a neurologist and staffed by a team of healthcare professionals specially trained in ALS. The centers are coordinated nationally by the Rare Disease Healthcare Network ALS (FILSLAN).
Team
- University Professor · Hospital PractitionerNeurologist
- Hospital PractitionerNeurologist
- Hospital PractitionerNeurologist
- Hospital PractitionerNeurologist
- University Hospital AssistantClinical genetics
- NurseCoordinator
- Speech therapist
- Neuropsychologist
- Medical Secretary
- Occupational Therapist
- Occupational Therapist
- Physiotherapist
- Physiotherapist
- Dietitian
- Social Work AssistantHepatogastroenterology
Activity
PresentationThe Amyotrophic Lateral Sclerosis Competence Centre at the Caen Normandy University Hospital is headed by Dr. Mathilde Lefilliatre.
The multidisciplinary team includes neurologists, a coordinating nurse, occupational therapists, physiotherapists, a speech therapist, a psychologist, a dietician and a social worker who work in partnership with pulmonologists, gastroenterologists, ENT specialists, geneticists, the mobile pain and palliative care team and the follow-up and rehabilitation care services.
Services involved
Service
