Willebrand disease

Willebrand's Disease Reference Center website

During the 2018 National Rare Diseases Plan (PNMR3), the CHU Caen Normandie treatment center was renewed as a constituent site of the Willebrand Disease Reference Center ( CRMW )

Team & location

Activity

Collaborations

Team and location
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Crew

University Professor, Hospital Practitioner

Professor Yohann Repessé

Hospital practitioner

Dr Marie Brionne-Francois

Hospital practitioner

Dr Philippe Gautier

Hemophilologist

Sonia Clement

Medical Secretary

Nicolas Guerin

Nurse Coordinator

Guillaume Delaval

CRA Investigator

Elise Vallee

Laboratory technician

Teacher in Adapted Physical Activity

Oriane Thuard

Health Framework

Elsa Lorphelin
Activity

Supported

The Haemorrhagic Diseases Treatment Center of CHU Caen Normandie ( CRTH ) provides comprehensive care for people with haemorrhagic diseases.

The Caen center provides comprehensive care for people with von Willebrand disease:

Clinico-biological diagnosis

Clinical and biological follow-up

Therapeutic Education Activities

Drafting of treatment protocol

The Caen center also provides training and teaching activities on Willebrand's disease and clinical and basic research activities (therapeutic trials, PHRC , etc.) .